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North Castle Daily News

Local Armonk Teen Travels to Congress to Urge Legislators to Join the Fight Against Cystic Fibrosis

Armonk, NY, June 23, 2016 – As part of the Cystic Fibrosis Foundation’s annual Teen Advocacy Day, Matt Grotta, age 18, will join more than 75 teens from across the country in Washington, D.C. to meet with elected officials and advocate on behalf of their loved ones living with cystic fibrosis.

Cystic fibrosis is a life-threatening genetic disease that causes progressive lung damage and makes it difficult to breathe. An estimated 30,000 people in the United States, and 70,000 worldwide, have CF.

During the event, the teens will speak with senators, representatives and congressional staff to advocate for more resources dedicated to CF research, treatment and care. The teens will ask their members of Congress to increase funding for the National Institutes of Health and the Food and Drug Administration, and to consider joining the House CF Caucus and the newly-formed Senate CF Caucus. They will also share their personal experiences of how the disease has impacted their families.

Matt said, "I am excited to advocate on behalf of my father, Tom. This is a chance for me to help join the fight against CF.”

This event is an opportunity for teen advocates to travel to Washington, D.C. and speak on behalf of those who cannot be there to speak for themselves. Because people with CF can spread or receive dangerous germs from each other, which can lead to serious lung infections, it is recommended that they avoid close contact with other people with the disease.

This year’s event will be held on June 22 and June 23 and will mark the Foundation’s eighth Teen Advocacy Day. The number of teens that participate grows every year and plays an important role in the protection of funding for CF drug research and development.